I heard from Duke today. Dr. Friedman (Duke) and Dr. Smith (Shands) will be talking later this afternoon to compare options available for Dallas at Duke to options available at Shands.
I've also talked with a doctor at Yale (she called me direct). She said she would be hesitant based on what she's seen, to concur that this is indeed new growth and not radiation effect. She said the PET scan Dallas is having tomorrow at Shands may be helpful but she doubted it would be conclusive.
Finally, we have been in touch with Dr. Kenneth Cohen at Johns Hopkins. It seems Dr. Smith knows him well and says he's a "good guy". We may try for a consult there as well.
That's all for now.
Shel (Mom)
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